The Association for X and Y Variations (AXYS) seeks a full-time Executive Director with leadership ability, a passion for making a difference and a strong background in fundraising and donor relationships to help grow a parent-run, largely volunteer national nonprofit. The perfect candidate will be a proactive leader who partners with the Board of Directors, manages a small staff and numerous volunteers including a very engaged patient community. Reporting to the Board of Directors, the E.D. will lead fundraising/development efforts, be responsible for budgeting, and the building of organizational capacity and communication with internal and external supporters. The E.D. will also oversee and guide the development and delivery of programming for family support, education, advocacy and awareness, while also supporting the scientific mission of AXYS. Proven success in organizational management required. Preference will be given to candidates with nonprofit experience in rare genetic conditions, special needs, healthcare, medical research, or patient advocacy, with a minimum 3 years’ experience. Benefits provided. Specifics will be discussed should position be offered. This is a virtual, work-from-home position. More information about AXYS can be found at www.genetic.org. Please do not contact AXYS directly. A cover letter describing your interest, and your resume, should be emailed as PDFs. Please include your last name in the email subject line and in the PDF file name.
Preference will be given to candidates with nonprofit experience in rare genetic conditions, special needs, healthcare, medical research, or patient advocacy, with a minimum 3 years’ experience. Four-year degree or higher required. This is a virtual, salaried position.
Additional Salary Information: Salary range $50-60,000 commensurate with experience and background.
The Association for X and Y Variations (AXYS) is an advocacy, education and support organization for individuals with X and Y chromosome variations and their families. The X and Y variations are also known as “supernumerary sex chromosome aneuploidy” (SCA). They include the trisomies of 47,XXY (Klinefelter syndrome), 47,XYY, and 47,XXX (Trisomy X). Also included are the more rare 48- and 49-chromosome variations 48,XXYY; 48,XXXY; 48,XXXX; 49,XXXXY; and 49,XXXXX. The mission of AXYS is to help individuals with one or more extra X and/or Y chromosomes and their families to lead fuller, more productive lives. AXYS celebrates the diversity of the human family, including sex and gender, skin color, ethnicity, religion, sexual orientation, gender identity, age, socioeconomic status, physical characteristics and mental abilities.